Patient Support Groups

Contact the following organizations for more information on inherited cardiac channelopathies or cardiomyopathies, to locate a physician who specializes in these disorders, or to locate a genetic counselor in your area.

Sudden Arrhythmia Death Syndrome
www.sads.org

Cardiac Arrhythmias Research and Education Foundation
www.longqt.org

Ramon Brugada Senior Foundation
www.brugada.org

The National SIDS/Infant Death Resource Center
www.sidscenter.org

National Society of Genetic Counselors
www.nsgc.org

Heart Rhythm Society
www.HRSonline.org

American Heart Association
www.americanheart.org

Hypertrophic Cardiomyopathy Association
http://www.4hcm.org/

Children's Cardiomyopathy Foundation
www.childrenscardiomyopathy.org

Hannah Wernke Memorial Foundation
http://www.hannahwernkememorialfoundation.com/

1-877-274-9432